What Aplastic Anaemia is? 

Aplastic Anaemia is a rare type of bone marrow failure that you've probably never heard of. It's where the bone marrow stops creating all kinds of blood cells. It's really rare and affects 1 in every half a million people. 

Aplastic anaemia treatment is very similar to the treatment someone might have for leukaemia - but because it's so rare, families often don't have access to the same information and support. 

Why are supporting The Aplastic Anaemia Trust?

Our lovely friend Kimberley Ball lives with this condition and is working hard for the charity to help awareness and support families.

The Aplastic Anaemia Trust is the only charity in the UK dedicated to supporting people with this super rare disease and funding research. 

If you could please sponsor us no matter how small , it would be greatly appreciated every penny adds up.

A small donation could enable us to send a copy of our Super Rare Max! children's book to a child going through treatment, or could help us pick up the phone to people who have been newly diagnosed with aplastic anaemia, and don't know where to turn. You could also help fund research into improved treatments, so more people can recover faster and with fewer side effects.

What we are doing?

Matthew is joining the Together Walk 2022 and on the 5th March will be walking up Pen Y Fan with our lovely friend Kim to help raise awareness and money.  

Many thanks Amanda & Matthew 🥶⛄️🎅

Previous Fundraising;

We braved the freezing sea on Sunday 5th December 2021  at Coney Beach Porthcawl.

If you feel inspired to get in the sea in 2022 why not sign up here. 

Amanda Nott