Aplastic Anaemia is a very rare condition, but you can help us make patients feel special - not alone. Help us raise funds and awareness in time for Rare Disease day (28 February 2021) and be Super Rare!

How rare?

Aplastic anaemia is an "ultra-rare" disease. Its estimated that between 100 and 150 people will be diagnosed across the UK every year - that's around two people in every million. 

"People don't understand that the treatment can be the same as cancer treatments and recovery will not just happen overnight. People can think because it’s not well known or the big 'C' it’s easily fixed." - Nicola

What does this mean? 

Funding for rare diseases is limited. People are more likely to fundraise or donate for a disease they have heard of - which means aplastic anaemia fundraisers are Super Rare too!

"People don’t often share posts for fundraising or people needing matches. It’s rarely acknowledged that it’s a serious illness it’s just heard as 'anaemia'" - Kimberley

Low awareness of aplastic anaemia means it can be hard to diagnose – this can put lives at risk as people wait to receive the right treatment.

Aplastic anaemia patients are often treated on cancer wards and given leaflets about leukaemia or other cancers – because the treatment is similar. But when they tell friends and work colleagues about the disease, the seriousness is underestimated because people confuse the name of the disease with being "anaemic" An aplastic anaemia patient may never meet someone with the same disease as them. Patients feel isolated and alone as they face long, difficult treatment for a disease they have to explain again and again.  

"We feel very excluded. If we hear one more time "It's not cancer"!!! 😡. It's very hard to get any support, not even free prescriptions for a chronic illness, or PIP." - Claire

By taking part in our Super Rare campaign for Rare Disease Day 2021, you will help raise awareness of aplastic anaemia, and funds which help The Aplastic Anaemia Trust to fund research and support these Super Rare patients. 

Earn your free tee

We've created a range of limited edition Super Rare T-shirts, to be worn with pride on Rare Disease Day on 28 February and Aplastic Anaemia Awareness Day on 4th March.

To get hold of one, raise £150 by taking part on our Super Rare campaign...

Take part

Super Rare Tea and Biscuits

Organise an online chat with friends, tell them a little about aplastic anaemia and see if they can guess the special ingredient in our Super Rare Biscuits!

Take part

Raring to go

Set yourself a simple challenge to complete in February 2021 and raise funds and awareness

Take part

Free fundraising pack

Help get the message out there, and hit your target fast - order your free fundraising pack using our online shop. The pack contains ideas, advice, posters and social media posts to help you tell others about why people with aplastic anaemia need our support:

Order a digital pack, to print at home

Order a printed pack to receive in the post

Can't fundraise now?

We're launching this campaign now because we think coming together to do something simple and positive will benefit our community. But if you can't deal with fundraising right now - you can donate, or don't worry! There will be more opportunities to join in in future when you're feeling more able to. 

Donate to this appeal