Skip over main navigation
  • Log in
  • Basket: (0 items)
The Aplastic Anaemia Trust
Helpline Marrowkidz Donate
Menu
  • Home
  • Who we are
    • About aplastic anaemia
    • Our vision and mission
    • Our impact
    • Our team
      • Staff
      • Trustees
      • Research and Clinical Advisory Panel
      • The AAT Youth Board
      • Work with us
    • Our history
    • Annual accounts
  • News
    • Changes to our board structure
    • Super Rare Campaign raises over £23,860
    • Apply to be Support and Outreach Programme Manager
    • Our first ever children's book is available now!
    • The AAT funds new research into COVID-19 vaccination responses
    • Family donates £30k after insurance company U-turn
    • More news
  • Get help
    • Support Line
    • Patient support events
    • MarrowKidz
      • Ages 5-11
      • Ages 12-16
      • Ages 17-25
      • Support for families
      • Videos for children
    • Resources & support
      • All information resources
      • Androgens
      • Eltrombopag
      • Ciclosporin
      • Anti-thymocyte globulin (ATG)
      • Steroids as part of ATG treatment
      • Clean Diet
      • Holidays and Travel
      • Discrimination at work advice
      • Cold season advice
      • Types of rare bone marrow failure
      • Request a free benefits consultation
    • Coronavirus resources & support
      • All coronavirus resources
      • How does Covid-19 affect aa patients?
      • What to do if you have Coronavirus
      • Coronavirus vaccine updates
      • Wellbeing Wednesdays
      • Webinars
      • Charity face masks
    • Order printed leaflets & booklets
      • Order print information: children & young people
      • Order print information: adults
    • A- Z jargon buster
  • Research
    • Our research into aplastic anaemia
    • Research and Clinical Advisory Panel
    • Research news and updates
    • Updates by research project
      • Covid-19 vaccine research
    • Grant applications
    • For clinicians
  • Events
    • All upcoming events
    • Patient support events
    • Fundraising events
    • Past events - recordings
  • Community
    • Join the community
    • Apply for our AA voices film project
    • AA Voices - personal stories
      • All personal stories
      • Meet our bloggers
      • Stories about mental health
      • Stories about diagnosis
      • Stories about bone marrow transplant
      • Stories from young people
      • Stories about children
      • Stories about watch and wait
      • Stories about bereavement
      • Ask Daniel
    • Donate blood and stem cells
  • Support us
    • Why give to us?
    • Donate
    • Find a fundraiser's page
    • Fundraise
      • Fundraising ideas
      • Fundraising events
      • Set up your own fundraiser's page
      • Social media resources
      • Thank you fundraisers
    • Volunteer
    • Other ways to give
  • Shop
    • Shop all
    • Shop branded products
    • Order free information for children & young people
    • Order free information for adults
  • Pages
  • Admin
    • Log in
  • Basket: (0 items)
  1. Who we are
  2. Our team
  3. Trustees

Trustees

Amanda Conquy, Chair of the Board

Amanda joined the AAT's Board of Trustees in April 2020 and became our chair in October the same year.

Expand

Amanda is an executive coach, working with leaders and managers, mainly in the arts, education and the third sector.  Previously she had been editorial director at Heinemann publisher and MD of the  literary estate of Roald Dahl.  While there she developed and had responsibility for two charities, Roald Dahl’s Marvellous Children’s Charity, a grant-making foundation working to improve the lives of seriously ill children, and the Museum and Story Centre which bears the author’s name, of which she became chair.   Amanda’s commitment to our work is founded on the experience of her daughter, who was diagnosed with Aplastic Anaemia in 2019.  She is also a volunteer prison representative for the Shannon Trust, which aims to transform peoples’ lives by encouraging prisoners who can read to teach literacy skills to those who cannot.

Published: 11th May, 2020

Updated: 21st January, 2021

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Jane Cozens

Jane was appointed to the Board in April 2018

Expand

Jane is a communications expert and digital strategist with over 25 years’ experience. She currently serves as Head of Communications at Southern Housing Group, one of England's largest housing associations. She was previously Head of Digital Strategy at the Group. Jane has worked as a freelance consultant and her clients have included major international law firms, digital design agencies and advertising agencies. She has advised on brand, marketing and communications strategies, SEO and other digital communications strategies and specific product development, including traditional messaging and online content development.

Jane is a non-practising solicitor and an associate of the Chartered Institute of Marketing.

Published: 10th May, 2018

Updated: 2nd August, 2018

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Paul Cossell

Paul was Trustee of the Board between 2007-2014 and after a break re-joined in May 2017

Expand

Paul has worked in the construction industry for over 30 years, starting as a Quantity Surveyor. The past 21 years have been with ISG plc, a specialist international construction services provider operating in 21 countries and employing approx. 2800 people. Paul was appointed CEO of ISG in early 2016 when the company was privatised following a takeover by an American investor.

Paul's commitment to the AAT is motivated by the fact his wife was diagnosed with Aplastic Anaemia in 1983. Initially Paul took part in several charity events organised by the AAT until in 2007 when he became a Trustee of the charity. Paul took a break from being a Trustee between late 2014 and early 2017 but has now recommitted for at least 3 more years.

Paul has been married for 28 years and has two grown up daughters. His hobbies include cycling, hiking and running, and he is a season ticket holder of Brentford FC.

Published: 10th May, 2018

Updated: 23rd May, 2018

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Sven Moos

Sven was a trustee of the AAT from 2007 to 2014 and re-joined in early 2017.

Expand

Sven has worked in corporate finance and banking for 30 years in the UK, the US and in Germany. He was a trustee of the AAT from 2007 to 2014 and re-joined in early 2017. Sven supports the AAT as he was diagnosed with a related disease to AA, PNH, and was successfully treated at St George’s Hospital, London, by Professors Ted Gordon-Smith, Judith Marsh and their colleagues in 2001.

Sven has witnessed the AAT able to make a significant contribution to fighting the disease by funding research as well as easing the anxieties, concerns and worries of patients as they cope with the illness. He is committed to supporting the AAT to allow it to intensify its activities significantly by ensuring it has the structure to grow and to enhance its fund-raising capabilities.

Published: 10th May, 2018

Updated: 21st January, 2021

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Tracy Stephenson

Tracy, a patient advocacy focused Trustee, joined the AAT Board in April 2020.

Expand

Tracy was a police officer in the Metropolitan Police for 30 years, retiring at the rank of Superintendent. She held a wide variety of roles during her career and built strong bonds with the community and partnerships with key stakeholders.

Tracy currently is a part-time lay member for the Bar Tribunal Adjudication Service sitting on a panel hearing discipline cases relating to Barristers. She volunteers for Great Ormond Street Hospital and the Anthony Nolan Trust.

Tracy is passionate about the AAT's work as her son was diagnosed with aplastic anaemia two years ago and has had a rocky road through treatment. As the new patient advocate she is keen to help transform patients' and their families’ journey through this disease.

Published: 18th May, 2020

Updated: 30th March, 2022

Author:

Share this page
  • Email
  • Facebook
  • Twitter
Back to top

Showing 10 of 5

Latest

  • Risk and Course of COVID-19 in AA and PNH Patients, Including Vaccination Strategies

    Risk and Course of COVID-19 in AA and PNH Patients, Including Vaccination Strategies

    We highly recommend this webinar about Covid-19 in aplastic anaemia and PNH patients, organised by our friends at Eurobloodnet and PNH Support.

  • Help us raise money for fighting aplastic anaemia

    Help us raise money for fighting aplastic anaemia

    Because a friend of mine is battling with this illness.

  • Leah's AA Fight for Life

    Leah's AA Fight for Life

    We are raising money in support of Leah

  • Stevie Jepson - Head of Finance

    Stevie works a few hours a week to manage our charity's accounts and finance.

Most read

  • Will aplastic anaemia patients be able to have the coronavirus vaccine?

    Will aplastic anaemia patients be able to have the coronavirus vaccine?

    All of the latest updates about Coronavirus vaccines and their impact on the AA community.

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Jerome: my aplastic anaemia story so far

    Jerome: my aplastic anaemia story so far

    My journey from diagnosis to transplant

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you're going into the hospital for ATG treatment, this fact sheet is for you

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • How does Covid-19 affect aplastic anaemia patients?

    How does Covid-19 affect aplastic anaemia patients?

    Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?

  • Covid-19 vaccine efficacy update

    We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.

  • Tasha's story

    Tasha's story

    I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!

Tag cloud

ATG Connor's blog diagnosis Elin's blog fundraising Kids mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video Winter 2021 work young people
Tasha's story

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Published: 6th April, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 7

Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Published: 5th June, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 1

Rikki: my rollercoaster experience of aplastic anaemia

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Published: 26th April, 2019

Updated: 16th February, 2021

Author: Grazina Berry

Comments: 14

Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

Sign up for our newsletter

Find us

Our postal address
The Aplastic Anaemia Trust
PO Box 591
Margate
CT9 9JZ



+44 (0) 300 102 3202
[email protected]

Links

  • Sitemap
  • Accessibility
  • Terms & Conditions
  • Privacy Policy
  • Complaints Policy

Follow us

  • Facebook
  • Twitter
  • Instagram

    Registered Charity No: 1107539/Company No: 5174065