AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
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Recalibrate Podcast- Episode 4, Connor and Rachel, who's son Max was diagnosed with Aplastic Anaemia, speak to Dr James Somauroo about the challenges of managing their son’s care and treatment amidst a pandemic. The impact of the experience on their and their son’s mental health and the lessons they hope that we all learn from the experiences of families like theirs. Read more
After receiving a stem cell transplant in September 2021, I knew I had a long recovery journey ahead of me. Everyone has different experiences - here's a post explaining the side effects I experienced, and how they were treated. Read more
Lily, Dan, Henry and Elin talk about what it’s like being a sibling that isn’t a match, feeling like a burden and wanting to protect those you love from your own pain Read more
Lily, Dan, Elin and Henry prove it's good to talk, even if it's about awkward subjects, reaching out, finding happiness, and looking for unexpected moments of humour and light when things get tough. Read more
In Dark Days, Henry, Elin and Dan chat about the impact aplastic anaemia had on their mental health. From therapy and thinking about dying, the group discuss the topic with candour. Please be warned that there is some adult language in this video. Read more
Henry, Elin and Dan talk about life after treatment. Future plans or lack of, trips to the sperm bank with your Granny, the feeling of missing out on things that so many take for granted. Read more
Emma is cycling John O'Groats to Land's End Read more
I was listening to words I did not understand. I was then sent to another department for x rays and blood tests. That was when I cried. Having never had a major illness in my life I was suddenly really scared. Read more
I've decided to record a video to tell you all about my time on The AAT Youth Board, and why you should join! Read more
Vicente is fundraising in memory of his wife Libby. Follow his 750km journey here. Read more
My treatment for aplastic anaemia went miraculously well, so I was surprised about the impact on my mental health when I returned to work. Read more
For those at the treatment stage; be patient, draw strength from within and those around you. Remember all times come to pass and never to stay. For those post treatment, be bold and do not be held captive by fear. I genuinely feel lucky to have experienced what I have. For you can never appreciate life until you have nearly lost it. Read more
Joanne talks about the difficult times she's been through as she's tried a long list of different treatment options for her severe aplastic anaemia. Read more
in the video I've decided to discuss the side effects I've had from the medications needed to help with AA. I spoke about cyclosporine and tacrolimus. Read more
When other treatment options didn't work out, I was recommended for a stem cell transplant. Here's what that was like for me... Read more