Since my mum was diagnosed with Aplastic Anaemia (a rare form of bone marrow failure) last year I have witnessed the immense challenges that arise with this disease. The rarity and complexity of this disease means that we are navigating through unchartered and daunting territory and at times it has felt impossible to explain to others what mum/ we as a family are going through. Read more
Zoe is holds weekly coffee mornings at the Leeds Maggie's Centre on Tuesday mornings. Pop along if you are in the area for a cuppa, a slice of cake and a chat. Read more
We know that for many families, the return to school after your child has been absent for a long time can be a difficult time. Disability and education expert Sharon Smith from Contact will take you through how to work with your school to make the transition back as smooth as possible. Read more
In May we will be running the Edinburgh Half Marathon for The Aplastic Anaemia Trust! Read more
Sblash Siôn Corn returns to Lido Ponty. Date still TBC Read more
Join us for our Scottish Santa Splash and take a dip in the sea in December. Read more
There's nothing quite like settling down to read a good book to take you away from the stressors of day to day life! Come and join our merry band of bookworms as we discuss what we've been reading in our monthly Book Club, Read more
Join us for our six-week course that helps you deal with the stress and uncertainty of living with conditions supported by CAN, SDS UK, DC Action, Fanconi Hope, PNH Support or the Aplastic Anaemia Trust. This course will be delivered by Psychologist Maria Mullan. Read more
Join us for our new Moving Forward: Living the life that matters to you course. This is a seven-week course that has been co-created by our Better Together Community Reference Group members and is designed to help you move beyond diagnosis and treatment, and into the life that matters to you. Read more
My brother and I will be running a 10K to help raise awareness about aplastic anemia and raise funds for new research and support for others! Read more
To raise money for research into this rare condition and finishing treatment for it. Read more
I am fundraising to raise awareness and help advance research about this rare blood disease that will help save lives and give new beginnings to loved ones. Read more
Sign our petition and write to your MP. Read more
Sol works a few hours each week in Margate, supporting with administration. Read more
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Aplastic anameia is not listed on the NHS website. Even worse, if you search for aplastic anameia, you will get information less serious conditions which aplastic anameia is often confused with! This is Read more
Aplastic anaemia is not listed on the NHS website. Even worse, if you search for aplastic anaemia, you will get information about less serious conditions which aplastic anaemia is often confused with! Read more
This is a monthly online chat group set up for people who are either awaiting a bone marrow transplant or who have already had one. Read more
This is a monthly online chat group set up for people who are undergoing treatment for aplastic anaemia. Read more
This is a monthly online chat group set up for people who are currently on watch and wait. Read more
This is a monthly online chat group set up for people who have been newly diagnosed with aplastic anaemia. Read more