The inspirational Isaiah and his fight

Isaiah and his family have lived in Los Angeles since moving from London, in June 2014. They have remained rooted in the UK, returning home every Christmas and splitting their time between London and Somerset. Distance has not stopped their English family from supporting them all on Isaiah's journey with aplastic anaemia. 

Isaiah was diagnosed with severe aplastic anaemia in February 2018 turning his and his loving family’s life upside down.

He went from playing ice hockey for three hours one night, to hospital admission the next. His immune system crashed and he was suddenly very unwell. 

After about six days in hospital he was diagnosed with the very rare, life-threatening disorder - Severe Aplastic Anaemia.

Aplastic Anaemia is a bone marrow failure disease which means that the body stops producing enough red cells, white cells and platelets as its immune system turns against itself - attacking stem cells that produce the blood. This severely limits the ability to lead a normal life. It can strike anyone, at any time, of any gender - but it disproportionately targets the most vulnerable - children and the elderly.

Isaiah was 10 years old and his life changed immediately - no more ice hockey, no more school, no crowded places, no more than one friend over at at time, no skateboarding or snowboarding, no travel. All the things he loved... stopped.

Isaiah began immunosuppressive therapy in March 2018 then spent the next six months in semi-isolation, at home, with his family and slowly his bone marrow began to recover. 

Isaiah returned to school in September 2018; he returned to ice hockey in November 2018 and he went snowboarding for the first time since his diagnosis in February 2019. 

Whilst Isaiah is doing well, the journey ahead is still long and uncertain with the hope that he can get off medication and his blood numbers hold. 

Isaiah has been positive throughout this journey and an inspiration to many. 

Your help is vital for The Aplastic Anaemia Trust to progress research into finding a cure for aplastic anaemia and allied bone marrow failure disorders in the UK, and for helping children like Isaiah to return to a fun and fulfilling life.

Thank you all for your generosity!