Where does your money go?

Every year we see our supporters raise thousands of pounds for the Aplastic Anaemia Trust. This is either through their own events, getting sponsored to take part in a challenge or by joining us at one of our events such as the Windsor Great Park Walk. Without these fundraisers, the AAT would not be where it is today and we are continuously overwhelmed and grateful for the amount of money we see raised and donated to us every year. But where do these funds get spent? Below is a list of just some of the things the AAT have paid for over the years.

1994 – The AAT helped fund the opening of a specialist clinical unit on the Ruth Myles Ward at St. George’s Hospital in Tooting. This unit provided state of the art facilities to assess new patients, give them ATG treatment or a bone marrow transplant.

Since 1999 – The AAT have helped aplastic anaemia patients and their families through their Patient Support, run by Bryony Partridge. Currently we have nearly 700 members but have helped many hundreds more over the years. Our Patient Support continues to be an important part of The Trust, allowing people affected by AA to feel that they are not alone.

2001-2002 – The Trust sponsored a Research Assistant at St. George’s Hospital in Tooting.

2001-2006 – During this time, the AAT was aiming to raise over half a million pounds to redevelop and modernise the facilities in the specialist Ruth Myles Unit at St. George’s Hospital. This was one of the biggest projects the Trust has funded to date and through much hard work and determination, the money was successfully raised. The new unit was finished and opened in 2007.

Nov 2002 – In 2002, a £240,000 MoFlo machine was launched at St. George’s Hospital, paid for by the AAT. Bone marrow contains many different cell types but it can be difficult to identify and study specific cells. The machine allows cells to be collected and analysed in detail which is crucial to understanding more about aplastic anaemia.

2003 – The AAT sponsored a Clinical Nurse at St. George’s Hospital for three years, from 2003.

2004-2009 – During this time, the AAT sponsored a Data Manager/Statistician at St. George’s Hospital, a very important role. The job involved: continued maintenance of the hospital database for all AA and BMT patients, continued reporting of every BMT patient to the European and International BMT Registries and a vast amount of other reporting and statistical analysis of AA patients.

2006 – We funded a research project between St. George’s Hospital and Kingston University, looking at how stem cells communicate with each other and to see whether certain new treatments would work for AA patients.

2009 – The AAT sponsored a PHD student at St. George’s Hospital for two years, who was working on bone marrow matrix.

2010-2013 – Aplastic anaemia is a rare disease but there has never been any prevalent data for AA and AA patients in the UK. Registries provide an important means to understand such diseases so the AAT was keen to help set one up. From 2010, we pledged three year’s worth of funding to set up and maintain this database.

2010-2018 The AAT have been paying for an Aplastic Anaemia Clinical Nurse Specialist at King’s College Hospital. She has been working closely with patients and The AAT’s Patient Support.Throughout the years, the AAT has also funded many research papers.