The following resources are available free of charge from the Aplastic Anaemia Trust. Some of them are in Portable Document Format (PDF) and you will need to download the free PDF viewer from the Adobe website to open them. If the resource you require isn’t available to download or you would prefer to receive a paper copy, please contact Patient Support on 0870 487 0099 or email support@theaat.org.uk

Medical information

1. Understanding Aplastic Anaemia Booklet produced by the Aplastic Anaemia Trust. Published March 2016.
2. Aplastic Anaemia: a brief introduction Leaflet produced by the Aplastic Anaemia Trust briefly explaining what aplastic anaemia is, the symptoms and treatments.  Printed November 2015.
3. The Clean Diet This AAT fact sheet explains what a neutropenic or ‘clean diet’ is, advises on safe food handling and storage for patients at risk of neutropenia and suggests suitable alternatives to ‘high risk’ foods. DOWNLOAD HERE.
4. The Little Guide for Transplant Patients

 

This short guide written by Anthony Nolan briefly outlines the stem cell/bone marrow transplant process.
5. A Parent’s Guide to the Transplant Journey Written for mums and dads of young patients, this guide explains what to expect in the coming months when your child is having a stem cell/bone marrow transplant.
6. The Seven Steps – Blood & Bone Marrow Transplantation A handbook for long-term recovery after stem cell transplant.
7. The Seven Steps – The Next Steps

 

A very comprehensive patient information book detailing the seven steps of bone marrow transplantation from preparing for the transplant through to long-term recovery.
8. Going into hospital for a course of Anti-Thymocyte Globulin (ATG) This information leaflet explains what the treatment involves, any risks or side effects, what to expect during your stay and about going home afterwards. DOWNLOAD HERE.
9. Steroids used as part of ATG treatment This information leaflet is for patients who have been prescribed steroids as part of ATG treatment. It explains what they are, how they work and any risks or side effects. DOWNLOAD HERE.
10. Ciclosporin used as part of ATG treatment This information leaflet is for patients who have been prescribed ciclosporin as part of ATG treatment. It explains what it is, how it works and any risks or side effects. DOWNLOAD HERE.

 Information for young patients

11. Wiggly’s World A colourful dictionary explaining words which children with aplastic anaemia may come across during their treatment.
12. Wash Your Hands!

 

A fun booklet produced by the Domestos Hygiene Advisory Service. Aimed at young children, it explains why and when hand-washing is important. A useful tool if your child is neutropenic.
13. Ben’s Stem Cell Transplant –

A Children’s Guide to SCT

Booklet produced by the Children’s Cancer and Leukaemia Group explaining the stem cell transplant process to younger children.
14. Jess’s Bone Marrow Donation – A Children’s guide to bone marrow donation Booklet aimed at younger children who are donating bone marrow to a sibling or close relative.
15. Donating Your Stem Cells to Your Brother or Sister – A teenager’s guide to stem cell/bone marrow donation Booklet produced by the Children’s Cancer and Leukaemia Group written for teenagers who are donating stem cells/bone marrow to a sibling or close relative.

Fact sheets

16. Travel Insurance Produced by The AAT this fact sheet lists companies who offer travel insurance to patients with pre-existing medical conditions such as aplastic anaemia.

Benefits

17. Benefits Fact Sheet Produced by The AAT this is a guide to the various benefits which patients and their carers may be entitled to.
18. Benefits claim form covering letter This letter written by The AAT can be used to accompany benefit claim forms. Written on AAT headed paper, this ‘To whom it may concern’ letter explains what aplastic anaemia is and how it and the treatments affect patients on a daily basis.

Other resources

19. Fundraisers pack This pack has literally dozens of ideas on how to raise much needed funds for the Aplastic Anaemia Trust.
20. Patient Support posters One of our aims is to have this poster displayed in every Haematology Department in the UK. Help us to promote the AAT Patient Support by displaying one in your local hospital.
21. Fundraising leaflet Leaflet explaining who we are, what we do and how you can help. Printed August 2017.